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My son Lennon was born 12 weeks premature. He was extremely medically complex and had profound and multiple learning disabilities. Lennon required nursing care around the clock to stay alive which myself and Ian provided at home with the help of amazing medical teams both locally and at Great Ormond Street. Lennon was under Palliative Care for 8 years and we were supported by our local Children’s Hospice, Keech Hospice.

Life took an unexpected turn when Lennon sadly died on August 3rd 2017, aged 10. I write about my grief journey and how our family copes without Lennon.

 

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Lennon, Isla and Florence ❤️

Lennon is the eldest of my 3 children. His sisters Isla Ruby Lily, 10 and Florence Ivy 5, both still love him dearly. They talk about Lennon everyday and he is still very much part of all our lives. Lennon adored his sisters, especially when they were being loud and crazy! (Which is most of the time.)

 

BAPS Award 2018 ‘Newcomer’ winner!

BAPS Award 2018 finalist in 2 categories – ‘Blog post that made the biggest impact’ and ‘Newcomer’.

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Save Nascot Lawn campaigner

 

 

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